Saturday, November 29, 2008
On the Arnie comfort front, he's still sedated -- and thus sleeping about 24 hours a day. A ventilator is providing the finest oxygen the University of Chicago has to offer, 'round the clock; the dialysis machine is humming happily. In total, he looks almost exactly like he has for the last two days: thoroughly asleep.
I'll post updates as they happen.
Sunday, August 24, 2008
So, why the headline, what does that have to do with any of this? Well, tomorrow morning, MJ and I will hit the road on a 14-day trip that will include a stay on an island in Lake Erie, a wedding in rural Pennsylvania, NYC for the best of urban culture, food and visual treats, Washington DC to see Zach and a final few days in Annapolis with MJ's sister, maybe sailing, maybe eating, maybe playing cards, maybe laughing, maybe all of those things.
However, this is more than a trip, it's a sign of change. This trip will be the third time we've planned an escape of some kind. The previous two were interrupted by profound and rapid changes in my health. Tomorrow is real lift-off. Tomorrow morning at dawn in the Prius loaded with road food, fresh clothes, a full tank of gas and a fully-loaded GPS, we'll be heading into the morning sun, smiles on our faces, fresh coffee in hand heading east. And like I felt as a young boy heading across the desert to the California coast in the '48 Buick at midnight to beat the desert heat, my sister and I tucked in the back seat of the Buick that was roughly the size of a contemporary apartment bedroom, fully alive with anticipation, the thrill of travel, of change, of the ocean. Mary Joe has her own memories of these times as her father traveled the world with his family as an officer in the Air Force. The wonders of "going" were and are the same.
Like 10-year olds, we won't sleep much tonight.
Arnie and MJ
Friday, July 11, 2008
Monday, July 7, 2008
Friday, July 4, 2008
Monday, June 30, 2008
Arnie’s packing up to go into the hospital for a one-week stay. They have not known the origin of the problem in the GI tract, and something mysterious, which may be Graft vs Host Disease appeared in the lungs during a CT scan this morning. Drs Godley (onc) and Mulane (immunologist) concurred that it’s time to get to the bottom of what’s causing his malaise, fatigue, lack of appetite that has been steadily increasing over the last three weeks. Three weeks ago, we were charting our course to see Zach in his triathlon, today, that seems ludicrous. While they have him sedated for the open lung biopsy, they’ll perform a bone marrow biopsy and within days, or perhaps tomorrow morning, do some GI scoping. What’s up with the lungs may be entirely different from what’s up in the gut. They’ve tried changing medications and waiting and seeing etc, I’m really relieved that this is taking place. I’m hopeful that when they know what to treat, they’ll no doubt know how to treat it. And this gradual decline has been disheartening to say the least. So, in a week, he’ll be better and moving in the right direction again. So, a week of biopalooza, and a whole new deal. More later, Mary Joe